Offline Support:
Children's Heart Society
A Canadian CHD support organization which helps co-ordinate international efforts too.
Little Hearts
A New England network of families of children with CHD.
Adult Congenital Heart Association
A support organization for adults with CHD.
Congenital Heart Anomalies Support, Education, and Resources
CHASER is a support group for families dealing with Congenital Heart Disease and its impact on family life.
Grown Up Congenital Heart Patients Association (GUCH)
Support group for adults with congenital heart defects.
Online Support:
PD Heart
An email discussion and support group for CHD with almost 1000 members from around the world.
Adult Congenital Heart Disease Forum
A site devoted to birth defects of the heart in adult patients.
Respite Care:
ARCH Respite Locator
An excellent resource that lists respite providers in all fifty states.
Respite Care
This page discusses the gift of time that respite care offers along with suggestions for parents.
